Capture Your Grief – The Unspoken

When you are pregnant with a baby that is going to die many things are left unspoken. There are many reasons why I left things unspoken and why others did too.

I often left things unspoken for the benefit of others. Whether it be the old lady or cashier in the grocery store or an acquaintance I passed by, I didn’t want to burdened them with a reality such as mine. What a great way to ruin someone’s wonderful day, by telling them about what looks like a healthy pregnancy is going to end in death. Not talking about it was also at times a gift, I could mentally slip into feeling all what I would have felt had things been different. The excitement of 3 boys under 3 years of age, talking and thinking about how busy I would have been. It also left me feeling like a bit of a liar at times.

Then there was the prenatal yoga class that I attended every Friday. Only the instructor and a good friend knew my baby wouldn’t be coming home with me. I even attended our last class knowing he was currently in heart failure. We all talked about our pregnancies, and the details but I always left out the fact mine wouldn’t end like theirs. I did this for me and for them. My reality for other pregnant Moms could be emotionally triggering and for me I did it because the end wasn’t important while I was there, it was me connecting with my baby doing something I did for my other two babies and something he deserved.

When a baby is diagnosed with a condition that is not compatible with life the medical field is often in a hurry to end the pregnancy. There are a long list of circumstances when this is the best option but in our case it wasn’t. I wasn’t in danger and my baby wasn’t in pain. After meeting with a high risk OB it seemed like I had two options and only one he would have chosen. The first was to terminate my pregnancy (which would be giving birth but to a smaller baby) or continue on with the pregnancy but it would be stressful and anxiety ridden. The option he didn’t present and left unspoken is the option to carry the baby as long as you can, fill the baby with love, embrace every moment you have together and come to peace with the fact your time together is short and your baby will die. I wasn’t full of anxiety, I was filled with love and the day he was born I felt peace. The truth is everyone makes different choices for different reasons. All options should be given. Ending a pregnancy doesn’t equal less pain, doesn’t make it easier and doesn’t lessen the grief. Holding your lifeless baby and saying goodbye changes who you are regardless when the baby is born.

Now 10 months later I often find myself leaving something else unspoken. “How many children do you have” I respond with “2 boys”. No one wants to hear in passing you have 3 but one is dead. Yet every time I say it my heart is crushed for Teddy. He is my third son. I have 3 boys. We are a travelling family of 4, but in my heart the 5th is always with us.

The list of things left unspoken is vast. There are reasons for this on both sides. To be honest, I am okay with some of it left unspoken. I do wish one day speaking about the death of a baby or child isn’t uncomfortable, it is met with empathy rather than an awkward silence and people not sure how to respond. If it is talked about more often it will become more natural. Babies die, children die, and adults die. It is just life. It is hard but a reality. The length of life doesn’t define quality, or the impact that individual has on all those who are left behind. Theo had great purpose and didn’t need years to achieve it. He lived, he died, he matters and will forever be loved.

Pregnancy and Infant Loss Awareness – Article in Local Paper. 

October is Pregnancy and Infant loss Awareness Month. 1 in 5 pregnancies result in a miscarriage and 1 in 100 births end with a baby passing away before, at or shortly after birth. I personally have experienced both. My early loss was my first son Jack’s twin early in pregnancy in 2012. It was physically painful, extremely scary, and emotionally heartbreaking. Our second loss was December 9, 2015 when our third son Theodore was born and passed away from a Congenital Heart Defect. This loss is profound and has taken our family on a beautiful journey learning to love fearlessly and unconditionally.

Reflecting upon my early emotions from these losses I realized both times we felt alone. We didn’t openly talk about our first loss and with the loss of Theodore we choose to be open in hopes that those who walk this journey after us will find comfort knowing they aren’t alone. No two journeys of loss are the same, but there are threads that are woven in the fabric of a heart broken from the loss of a baby that are mirrored in each loss. I have found being able to speak and write openly about our journey to be therapeutic.

I often wonder why, with something so common, do we have a culture which is uncomfortable talking about miscarriages and infant loss. What I know to be true is that healing happens when the pain is acknowledged, when the name of your baby is spoken, and when you are loved through your journey no matter how messy it gets. Living your forever without your baby is hard, mothering a child you can only hold in your heart feels incredibly overwhelming and impossible at times but with the love and support of your community this can feel lighter. It can feel bearable.

The day Theodore was born and left our physical world was the day a new me was born. I have had to be gentle with myself as I struggle to figure out whom that new me really is; how to navigate the world with a broken heart that will never mend and with a void that can never be filled. I see my son missing from every moment of my life. It is impossible to see my two boys and not see the third missing. I also see him present everywhere. He has many ways to tell me how close he truly is especially at times my heart hurts the most.

Experiences like these leave you at a crossroads choosing between walking the path that allows you to form a hard shell over your shattered heart or becoming open, vulnerable, and honest. Knowing the path would be harder but so much more rewarding, we chose the latter. Our family is forever changed in most beautiful ways because we are walking this journey by choosing the route that leads us to love fearlessly.

Many couples have silently carried the loss of a baby for decades. A parent doesn’t get over a loss like this but the loss can feel lighter with time and sharing helps lighten this load. Throughout this month, share your experiences with one another. Talk about the babies we no longer can hold, use their names, and ask questions. It is time we break the silence and embrace the truth about life. Babies die. It is heartbreaking but true. There is no shame and it doesn’t need to be uncomfortable. We can comfort and lift each other up, if we can be open with the reality that this happens to many.

http://www.intelligencer.ca/2016/10/03/healing-comes-easier-when-we-discuss-our-loss

Your Thread is Forever 

Teddy playing with his brother last Sunday morning. (Look for the green orbs)
Teddy my sweet,

I come to you today with love and gentle arms that hold you dear. Life has been ever changing since you came and left our physical world. My life has always been forever evolving, I have been given a blessed life in that way. Since you enter my life, my world changes so quickly, sometimes from moment to moment and sometimes in ways that are permanent but it is those shifts I am most grateful for.

I have days that my heart is so heavy I wonder how I can carry this weight for the rest of forever. I also have days where my heart is light, it feels beautiful, I see things that remind me of you and instead of sadness it brings joy. I know I need to walk the path that leads me to joy. To the place you would want me to be, yet walking it is scary; to let go of the heartache, to allow it to slip a way without fear it may never come back. I have been so scared to make this choice as it feels like I am walking away from you. My brain knows this is not the truth but my heart can sure make it feel as if it is. I am choosing to be brave, I am choosing to allow some of the pain shed from my being allowing space for more joy to grow.

You are a thread that is woven into the fabric of our family. A thread that is so important because with it we are stronger. This is a thread that can never be removed, can never be forgotten, and now without it we simply wouldn’t be us. I have had fear people with time wouldn’t see your thread woven into the fabric of our family. I have had fear people wouldn’t see how important you really are or how much you matter. The truth is I know, your Dad knows, your brothers know and those who love us know how special  you are so maybe that is all that really matters. It is enough that only we know and those that are close to us who choose to understand will also always know and maybe it is time for me to be okay with allowing you to just be uniquely you and loved by those close to us just as you would had you lived.

I know as I walk this journey with you I can’t make a wrong turn but I can make better turns. I can make choices that can foster a life with more love and more joy and by doing so doesn’t take away from you but adds to you and your value to our family. I want our family to be woven with a multitude of colourful threads all equally important as the next. Your colour will always shine bright and be visible to our family.

Walking the path to joy isn’t always easy. I have learned that we need to protect our hearts sometimes. We have to take time for ourselves and that is is okay to not put ourselves in situations that triggers heartache. Recently those who truly love us, have been extremely loving as we have chosen to tend to our heart’s needs and we are so grateful for the unconditional love we have received.

Teddy, I am always here, I will always love you. Till the day we meet again you will be loved, this much I know is true.

Your Mommy

PS – Thank you for showing up in our pictures this last weekend. I love it when you show up.

Happy Half Birthday 

Happy 1/2 Birthday Theodore,

Oh sweet boy of mine. As I type this exactly six months ago you entered the world and laid upon my chest. Your sweetest little heart was still beating and you looked ohh so incredibly perfect to me. Your Dad, myself and all those who were blessed to bare witness have been forever changed and I believe in the most beautiful ways.

You chose the perfect people for your first birthday party six long (or short depending on the moment) months ago. I feel that love the room was filled with and the moment you entered into the outside world that love grew tenfold.

The last six months have been the most life changing months of my life. When you were born so was the new me. I have had to learn to live without you and get to know who the new me really is. I haven’t mastered either but there has been evolution. With every step forward my ability to turn around and see where I came from allows me to see where I am going. It is like coming out of a fog.

This morning I met your beautiful friend Isaac’s Mom at the lake to celebrate you both. You both chose a beautiful morning to be born and you chose a beautiful morning to celebrate your 1/2 birthday. I can see you both looking down on us with hearts full of love, pride and an amount of sadness. With every flower we tossed in the lake to represent each month you have been gone for I could feel you, I couldn’t help but think it is only time and in the grand scheme of things time is nothing and we will be together again one day. When that day arrives I know it will feel like we haven’t skipped a beat.

I hope you two have a wonderful day together as I know I will with Isaac’s Mom.

You both are missed deeply, truly and loved beyond measure.

I love you,

Your forever loving Mommy.

 

Finally Home . . . 1 year ago today. 🐘

Littlest Theo finally home
Couldn’t have been happier to take my baby home that morning.
Theo my forever baby,

One year ago today you came home. The only home you were ever going to know here with us. You were welcomed in to my womb with love and anticipation of the life we were going to finally live together. Your Dad and I talked about you all the time ever since you were created and then put on hold for about three years. We wondered who you were, were you a girl or a boy, would you survive the thaw, would you start to grow once transferred to my womb, and then how amazing our family would be once you were earth side with us . Never once did we think that after being transfer and developing into the most beautiful baby that would have been the only time we had with you.

Babies die, but not ours. It honestly wasn’t in our realm of possibilities. You get past a certain stage in pregnancy and you have this false sense of security. It never crossed our mind that a baby we created out of desperate love and longing for a family could beat all the odds of conception, grow and then be taken. It seems like a cruel joke. Not many people get to fall in love with their baby years before they are implanted into their body. It wasn’t just a potential baby it was you Theodore Rutherford Williams.

I look at the picture that your Dad took of me moments before you were transferred home. The innocents in my eyes is so beautiful. I was just so in love with you and so excited we were all finally going to be a family and taking you home was one of the best feelings in my life. I felt so at peace that day. I was so ignorant to what this journey was really all about. Your Dad and I prayed together that morning and our prayers were answered we just simply had no idea what they really were going to look like once answered.

Well, what a year we have had! How blessed am I that I had the opportunity to have you with us for your whole lifetime. I carried you every minute of your beautiful life. The life we shared was of pure unconditional love. It was simple and it was easy then. The second leg of this journey is what is so dang hard. Living my life so far away from you, loving you as any mom loves their child and never being able to feel that love back in the traditional ways. It steals my breath, and at times feels impossible to catch.

Sunday I am off to a lodge two hours outside of Winnipeg. For five days I am sharing space, hearts and stories with 25 other Moms who love their babies as fiercely as I love you and also who can no longer hold them in their arms. These Moms are from four different countries and all different backgrounds but we share something that binds us so closely, only we know what it is like to Mother a child you can’t hold, see, kiss, and watch experience life. Only a bereaved Mom knows how tender the love really is and how one’s heart can still beat after being so broken in ways that will never be mended.

I look forward to five days of just you and me Theo. You and me, healing, living, and feeling peace together. Life is so busy with regular life, two precious boys and a loving husband at home. This gives me time to just be present with you for a few days and to celebrate you as the son you are to me with women who truly get it. I have no idea what this week will look like, and frankly I am open to whatever comes.

Thank you for the most incredible year we have just had together. You changed me in ways I didn’t know needed to grow, we shared the most beautiful 8 months I have shared with anyone, I learned a new depth to love and the gifts have been abundant. My heart is heavy with pain, but it is filled with so much love for you and has enabled me to love others in a deeper more pure way. This is all because you lived. I need you to know that I would never have made a different choice. Even if I knew before you were transferred that you would die, I would still to choose those eight months and a broken heart. Living a life where you never existed to me is a life not worth living. Thank you for choosing me.

Your forever loving Mommy.

Valentines Day

valentine

Teddy will you be my Valentine?

Happy Valentines Day my love! The sweetest gift of all would be a kiss from you. Instead I hold you in my heart and on my mind all day today. We spent most of the day at the Cooke’s cottage surrounded by amazing friends. It really was a great weekend as always. I felt your presence missing, like you just weren’t there. Not in the obvious way but in a way a person who feels an itch after their leg has been amputated.  I couldn’t let go of the feeling that you were intend to be with us there, the void was notable.  You are my son and I shouldn’t be celebrating family day without you.

Today I was holding baby William telling Bo and Jack that he was Lauren’s baby brother. Jack then told us he has two baby brothers. He sure does, and in his heart today he was missing you. He is so young yet he knows. It must be the time you spent in Ottawa together. I would love to know how your connection grew in those few months. I love the sound of your name when spoken by others but nothing makes my heart sing so loudly as when it rolls off Jack’s tongue.

I love you and am missing you today. I miss you always. Pretty much every second of every day.

Your Valentine, Mommy